Leprosy, podoconiosis and lymphatic filariasis (LF) may adversely affect the social, economic and psychological well-being of persons affected and their families. The objectives of this study were to assess and compare family quality of life of persons affected and their family members, explore the relationship between family quality of life and perceived stigma and activity limitations and explore what factors influence family quality of life.
This study found that persons affected by leprosy, podoconiosis and lymphatic filariasis had significantly higher levels of family quality of life than family members on the ‘family quality of life’ scale. This means that persons affected had a more positive view of their own quality of life within the family context, and of the opportunities and ability of their family as a whole to achieve its goals in the community. It is likely that family members’ support of their affected family member has a positive impact on the quality of life of persons affected but adversely affects their own quality of life. While the family is an important resource for the persons affected, the support needs impact the whole family.
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